VisibleDisabilities

About the FounderSammie Carpenter

Hi, I’m Sammie, the founder of VisibleDisabilities.
I live with multiple chronic, dynamic, and invisible illnesses. Like many others, I often appear able-bodied despite significant limitations—a reality that brings unique challenges when navigating healthcare, accessibility, and understanding from others.
Through my own medical journey, I’ve learned how overwhelming the healthcare system can be, from managing appointments and insurance to communicating effectively with providers. I’ve also experienced firsthand how powerful it can be to feel supported, informed, and prepared.
I am a certified pain advocate through the U.S. Pain Foundation and have been featured in their INvisible Project. My advocacy work has included participation in federal, state, and local initiatives, as well as panel discussions for future medical professionals at Johns Hopkins focused on improving pain education.
Patient advocacy became an important part of my life as I supported friends and loved ones facing similar struggles. Today, I bring both lived experience and formal advocacy training to my work—helping others feel less alone and more empowered in their care.

Invisible Project Article

Our Vision and Mission 

Core Principles

At VisibleDisabilities, we partner with people living with chronic illness and chronic pain to help them navigate medical appointments, healthcare systems, and the administrative demands of care. Our goal is to ensure clients feel heard, supported, and empowered throughout their healthcare journey. Our goal is to make invisible disabilities visible through advocacy and community.

Compassion First
Every person’s experience with chronic illness is valid. Care should be rooted in empathy, patience, and respect.
Client-Centered Support
Services are tailored to each individual’s needs, preferences, and comfort level—there is no one-size-fits-all approach.
Collaboration, Not Replacement
We work alongside existing care teams and caregivers to support communication and understanding, not replace medical professionals.
Accessibility & Flexibility
Support should meet people where they are—physically, emotionally, and logistically.
Advocacy & Education
Systemic change begins with informed individuals and collective action. Education and advocacy are essential to improving care for all.

About VisibleDisabilities

About the Founder

Sammie Carpenter

Hi, I’m Sammie, the founder of VisibleDisabilities.

I live with multiple chronic, dynamic, and invisible illnesses. Like many others, I often appear able-bodied despite significant limitations—a reality that brings unique challenges when navigating healthcare, accessibility, and understanding from others.

Through my own medical journey, I’ve learned how overwhelming the healthcare system can be, from managing appointments and insurance to communicating effectively with providers. I’ve also experienced firsthand how powerful it can be to feel supported, informed, and prepared.

Patient advocacy became an important part of my life as I supported friends and loved ones facing similar struggles. Today, I bring both lived experience and formal advocacy training to my work—helping others feel less alone and more empowered in their care.

Our Vision and Mission

Core Principles

Why VisibleDisabilities?